Assessing the Burden of Diabetes by Type in Children, Adolescents, and Young Adults (DiCAYA) Network

PI(s): Christopher Forrest, The Children's Hospital of Philadelphia; Charles Bailey, The Children's Hospital of Philadelphia

Purpose: To help understand the difference in pediatric rates of Type 1 and Type 2 diabetes mellitus across sociodemographics (e.g., race/ethnicity, geography) and clinical characteristics (e.g., body mass index), the proposed project will use electronic health record (EHR) data to assess the prevalence and incidence of PDM, overall and by diabetes type and patient sociodemographic and clinical characteristics. Data will come from PEDSnet, a national pediatric clinical research network that has transformed EHR data to a common data model for over 6.5 million children. PEDSnet includes 8 pediatric medical centers that provide care to children in all 50 states; however, the 11 states with the greatest concentration of children are: CO, DE, FL, IL, IN, KY, MO, NJ, OH, PA, and WA.

Study Design: Multi-CRN interventional study

PCORnet® Partners:

  • The Children's Hospital of Philadelphia (PEDSnet)

PaTH Partners:

  • Geisinger
  • Johns Hopkins University
  • RUSH University

Sponsor: CDC

Coordinating Center: The Children's Hospital of Philadelphia

Study Website

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