Operationalizing Patient-Reported Outcomes Measurement with EHRs in Patients with Heart Failure (PROs HF)

PI(s): Justin Bachmann, Vanderbilt University

Purpose: The systematic measurement of patient-reported outcomes (PROs) in routine clinical practice has profound potential to accelerate patient-centered care and research, allowing providers and health care systems to focus on outcomes that matter most to patients. This study aims are to 1) operationalize collecting patient-reported outcome measurements (PROMs) from electronic health records, 2) upload PROMs into the PCORI® Common Data Model. 3) validate a simple heart failure with reduce ejection fraction phenotype to use the PROMs in future research, and 4) analyze the association of PROMs with markers of heart failure disease severity using the data available in the individual health system’s electronic health records.

Study Design: Multi-CRN Data only Observational

PCORnet® Partners:

• Vanderbilt University (STAR)

PaTH Partners:

• University of Pittsburgh

Sponsor: PCORI®

The PROs HF study is a PCORnet® Study conducted using PCORnet®, the National Patient Centered Clinical Research Network, an initiative funded by the Patient-Centered Outcomes Research Institute (PCORI). More information about PCORnet® can be found here.

The PROs HF study was funded by PCORI through PCORI Award (RI-RCIP-1812-002).

The statements presented on this website are solely the responsibility of the author(s) and do not necessarily represent the views of other organizations participating in, collaborating with, or funding PCORnet or of PCORI.

Coordinating Center: Vanderbilt University