As interest in real-world data grows, so do the number and complexity of questions that networks such as PaTH are asked to answer. These questions, or queries, can range from simple population identification, like “How many people in the system have a diagnosis of diabetes?”, to more complex queries, like….

On Tuesday, May 14th, members of the PCORnet Steering Committee as well as representatives from PCORI convened in-person in Washington, DC for the 2026 PCORnet Steering Committee F2F with the goals of....

This storyteller shares her experiences managing her mental health, as well as a late diagnosis of Asperger syndrome.....

Access to high quality health record data is a critical feature of patient-centered real-world evidence research. In addition to the quarterly refreshing and quality checking that each PaTH site performs to maintain the PCORnet Common Data Model at their institution….

Up to 50% of people with diabetes will develop painful neuropathy, yet questions remain about how best to treat this common condition. Dr. Brian Callaghan of the University of Michigan and a team of researchers from 23 sites across PCORnet....

In this story, a man talks about his struggles with neuropathy.....

Dr. Annemarie Hirsch, an epidemiologist in Geisinger’s Department of Population Health Sciences, and the director of the Center for Community Environment and Health, is leading a new study….

One of the many challenges facing health researchers is that different health systems code data differently. The PCORnet Common Data Model, or CDM, solves this problem by standardizing millions of data points from the EHRs of its member health systems to create a common format that researchers....

In this story, a young woman describes her experience with endometriosis and the importance of emphasizing women's health....

On Tuesday, the 17th of February, a group of over 35 patient partners and potential patient partners met for the inaugural meeting of Trialblazers. TrialBlazers is a virtual community of patient partners….

The February 2026 special edition of Medical Care that is focused on PCORnet featured an article illustrating the role of PCORnet in innovative clinical trial design. Dr. David Williams, PaTH Site Principal Investigator at the University of Michigan....

At the prime of her career, and with two children in college, a woman shares her journey with cancer and how her experiences with insecurity, depression, and weight loss, pushed her to open a thrift store to provide confidence to people diagnosed with cancer....

“The time for incremental change has passed; we need transformational action that places patient partnership at the center of how we conduct, fund, and evaluate health research.”….

Please join us in congratulating University of Pittsburgh investigator Nader Shaikh, MD, MPH, who has been awarded over 20 million dollars from PCORI....

This storyteller shares their experience when their daughter was hospitalized for pneumonia,....

On any given day as PaTH’s Research Readiness Coordinator (RRC), Bonny Rockette-Wagner might meet with an investigator to introduce them to PCORnet™ resources, help refine a data query to find out whether or not sites have sufficient numbers of patients to consider participating in a given study, or review recent timelines for study start-up with project managers from across the PaTH Network. The role of the RRC was designed to help….

Brimming with sincerity, warmth, and wit, PaTH Network co-Principal Investigator and PCORnet Steering Committee member Greg Merritt was the featured guest in a keynote event to kick off the PCORI Annual Meeting last month. In a “fireside chat” format conversation with PCORI Executive Director Nakela Cook, Greg shared his rich experience as a patient and patient partner as well as his vision for the future of patient-partnered health research. He noted that his early days....

November was national Diabetes month, and this storyteller with diabetes shares how side effects from medication led to making lifestyle changes....

On September 11th , PaTH hosted the very first PCORnet ® Regional Roadshow. Held at the University Club on the Pitt campus, attendees included investigators from over 35 institutions, patient partners, and representatives from PCORI and PCORnet ®. The meeting had two goals….

The PaTH Network is sharing our successes and lessons learned from our development of the Discovery to Implementation Collaboratory to engage stakeholders across our network to prioritize health care improvements....

A cancer survivor shares why her healthcare team made a positive impression....

We are delighted to announce the late-summer publication of “Real-World Prescribing in Accordance to ACC/AHA Guidelines for Lipid-Lowering Therapy in High-Risk Primary and Secondary Prevention of ASCVD” in the American Journal of Preventive Cardiology (in press)….

Engagement is at the heart of every study at PaTH, and the CODA Engagement Advisory Board is connecting patients with diabetes and their caregivers with clinicians and researchers across the network...

This storyteller shared their story about how back pain has affected their ability to work full time....

The PaTH informatics teams will be updating their Common Data Models (CDMs) from version 6.1 to 7.0 in July. Here’s a preview of some of the improvements that a supplemental infrastructure funding award is supporting….

CODA has officially kicked off! The COVID-19 and Diabetes Assessment (CODA) Study, led by Principal Investigator Dr. Russel Rothman at Vanderbilt University Medical Center, is a multi-network observational study that seeks to answer key questions raised by patients and clinicians about how COVID-19 affects the development of type 1 or type 2 diabetes....

Here, a storyteller shares how poor health care professionals can directly impact patient recovery, as they share their two-year journey in which they transitioned from living with Type 2 diabetes back to pre-diabetes....

Have you ever been asked to rate your pain on a scale of 0-10? Did you feel like you needed more than a number to communicate how you were really feeling? Researchers studying sickle cell pain in adult patients across the U.S., including at several PaTH sites....

The PaTH Network is a hands-on laboratory for PhD student Amir Azizian, whose inclusion in the inaugural MEL-STaR (Michigan Embedded Learning Health System Training and Research) program cohort includes working alongside experienced researchers and implementation scientists....

Having dealt with the challenges of a lack of patient-health provider time, having been placed on multiple medications, and a recent hospital admission...

Several members of the PaTH Network leadership congregated in Washington D.C. on February 19 with other PCORnet Network leaders for the kick-off of PCORnet 4.0.....

Very few people are given a second chance at life, but Greg Merritt considers every day following his out-of-hospital cardiac arrest in February 2012 to be the blessing of a second chance to live exactly as he intends.....

This storyteller shares their experience with the health care system, over their lifetime, from having a congenital heart disease, frequent hospital visits, to becoming a nurse himself....

As part of PCORnet® 4.0, PCORnet has introduced the role of a Research Readiness Coordinator within each of the Clinical Research Networks. We are thrilled to officially welcome Dr. Bonny Rockette-Wagner into that role here at PaTH! Over the past year, Bonny has been a valued member of the PaTH team, contributing her expertise and insight.....

The PaTH Clinical Research Network’s Discovery to Implementation (D2I) Collaboratory held two events in November to identify its next focus area for improving health care. After engaging over 100 patients, caregivers, researchers, clinicians, and health system leaders, kidney disease in patients with diabetes was selected as the priority for the next improvement project.....

This storyteller shares their experience with being a caregiver to relative with severe diabetes, the lack of quality certified at home care professionals and the awareness to recognize when you can't provide enough support anymore....

We’re excited to share some big news: PaTH has been awarded $13.5 million in infrastructure funding to continue our role as a PCORnet® Network Partner over the next four years in Phase 4 of PCORnet!.....

This past November, we were delighted to host the annual PaTH Steering Committee meeting at the University of Pittsburgh. This event brought together representatives from all nine PaTH sites, along with our valued patient partners.....

The PaTH Clinical Research Network’s Discovery to Implementation (D2I) Collaboratory held two productive events this November to bring together a variety of voices and make progress toward improving health care......

This storyteller shares their experience with the health care system throughout managing Type II Diabetes.....

Natasha Norman, the PaTH Engagement Project Coordinator, recently had the honor of speaking at The Mast Cell Society’s (TMS) biennial meeting, TMS MastCellCon. At MastCellCon, Natasha introduced Story Booth to the TMS community.....

In 2014, PCORnet first received funding from the Patient-Centered Outcomes Research Institute® (PCORI®), marking the beginning of an ambitious and transformative initiative to revolutionize healthcare research. This year, PCORnet celebrates a huge milestone—its 10-year anniversary.....

In this discussion, a woman describes enduring illnesses since the age of two, including mast cell activation syndrome, anxiety, and depression.....

Autoimmune diseases are becoming more common in recent years. Although individual instances of autoimmune diseases can be quite rare, collectively.....

Last year, the PaTH Network’s national parent organization, PCORnet®, launched an initiative to expand our clinical research capabilities to more diverse regions and populations. PaTH has been lucky to welcome two new sites into.....

In this story, the storyteller shares their experience with the health care system after rapid onset Rheumatoid Arthritis, an aggressive form that also impacted their mother’s life......

As a patient-centered research network, PaTH is proud to participate in the CaRISMA study, a project that has emphasized community from its beginnings.....

Health research relies on data, and good data requires excellent informaticians. The PaTH Network is very lucky to have wonderful informatics teams across our seven sites. We spoke to Neena Thomas.....

Being readmitted to a hospital after a previous hospital stay is an undesirable situation for both patients and hospitals as it is costly and often preventable.....

The PaTH Network prides itself on being patient-centered, requiring dedicated time and staff for patient engagement. Luckily, we have a fantastic outreach team, including Crystal Evans.....

On Sunday, October 23, members of the PaTH team at the University of Pittsburgh attended the Buddy Walk, an event organized by the Down Syndrome Association of Pittsburgh.....

In October, PaTH hosted the first of a series of workshops with our network patient partners. The basis of these meetings is to discuss topics where patient partners believe researchers should focus, how PaTH research focuses on that topic and how they can provide feedback on that research.....

In this health narrative of the MyPaTH Story Booth archive, a mother describes her experience caring for her daughter who has Down syndrome.....

PaTH is pleased to announce the PaTH Scholars program, established following a successful pilot implementation from 2020-2021 at the University of Pittsburgh. The PaTH Scholars program aims to mentor and engage scholars through hands-on participation alongside experienced PaTH researchers, as .....

Patient partners at the PaTH Network have expressed the need for us to focus more on maternal health, and one way we are addressing this important health issue is through a new workgroup led by Dr. Seuli Brill.....

In this story, a mother describes her experience with high-risk pregnancy due to a condition that affects her blood’s ability to clot......

Our patient partners told us they would like to focus more on maternal mortality and morbidity, so we invited Dr. Shari Lawson to present on the topic to the group on Wednesday, July 27....

The PaTH Network is currently recruiting participants for the PREVENTABLE Study: PRagmatic EValuation of evENTs And Benefits of Lipid-lowering in oldER adults.....

This original painting is part of the PaTH Story Booth Special Collection of story-inspired artwork.....

In October, PaTH hosted the first of a series of workshops with our network patient partners. The basis of these meetings is to discuss topics where patient partners believe researchers should focus, how PaTH research focuses on that topic and how they can provide feedback on that research.....

The PaTH team is delighted that Greg Merritt, one of our patient partners engaged through the University of Michigan, has joined the national PCORnet Steering Committee and Engagement Work Group!....

Our team has created a "special collection" of Story Booth narratives that address life and health during the COVID-19 pandemic. Patient advocate and medical expert responses to the stories are also shared in the accompanying videos.....

In mid-September, all seven PaTH sites gathered at the University of Pittsburgh for a two-day Steering Committee Meeting. The principal investigators, project managers, informatics teams, as well as PaTH patient partner, Treva Alston, were on hand to discuss the exciting happenings within the network....

Get to know Temple University’s informatics lead, Alice Livshits .

The PaTH Network Primary Care cohort is an exciting way to gain insight into health behaviors among primary care patients. This cohort of patients was given a series of surveys...

The Ohio State University Wexner Medical Center, ranked #3 among 104 academic medical centers, is one of America’s largest and most comprehensive universities and is home to more than 20 research centers and institutes and 25 core research laboratories...

The ADAPTABLE Study set out three years ago to compare the effectiveness of two commonly prescribed doses of aspirin to prevent heart attacks and strokes in those living with heart disease...

During the first six months of 2019, the PaTH Stakeholder Workgroup piloted a survey it had developed to assess patient partner interest in and opinion on the PCORnet research queries that PaTH fulfills...

Nearly 40% of adults are obese in the United States, making it our number one health concern. There is a well-established link between obesity and increased morbidity...

Get to know the University of Pittsburgh’s informatics lead, Nickie Cappella.

2019 has brought some exciting changes to PaTH, including the addition of two new sites to the network – the Ohio State University and the University of Michigan...

Overweight and obesity are established risk factors for cardiovascular disease. Successful weight loss strategies have focused on reducing calories and modifying dietary composition...

The PCORnet site at the University of Michigan (U-M) is pleased to become a new member of PaTH. Previously a member of LHSNet, our site is both joining a new network and finding a new home within our own academic institution...

To understand what “Real World Evidence” entails, we must first describe the understanding of real world data. Real world data are data related to patient health status and/or delivery of health care that is routinely collected from various sources....

The MyPaTH Story Booth project aims to help researchers understand the perspectives of patients and caregivers facing illness or who have difficulty accessing health care...

Get to know the Principal Investigator of another new PaTH site—Soledad Fernandez, PhD...

The Common Data Model (CDM) is the structure in which health systems and health plans assemble data from electronic medical records and billing systems for PCORnet...